Wednesday, July 4, 2007

Peyronie's Disease Society public forum

Peyronie's is a relatively common, though generally concealed, disorder. It may affect as many as 1/100 men, though I suspect the "significant impact" number is closer to 1/300 or so.

For such a relatively common and rather significant (to us) disorder, there's not much on the net -- lots of brief introductions, very little discussion, quite a few scams.

There's one notable exception: the Peyronie's Disease Society - Forum, which is the communication center for the Peyronie's Disease Society. The PDS is so pure it doesn't even seem to have advertising:
... We are non-profit. We have no commercial interests, and are funded solely from the personal finances of our management team. Our membership base actively contributes to information, education, and support, through our Peyronies Disease Forum...
I've browsed the forums, and, given my background, it's not surprising that I'm familiar with most of the science and discussion topics. There's a lot of enthusiasm for topics I'm not interested in (various vitamins, DHEA, etc), but there's also discussion of surgical interventions and results. That kind of data is very hard to find.

I'll be browsing the forums on a semi-regular basis, looking for topics that suggest some literature research.

1 comment:

Anonymous said...

Yes, there is a permantly solution for a Peyronie´s disease.

It depent of the curvature, you may not to resort to the surgery, and in so many cases of surgery the doctor recomend it for an after treatment. I am talking about Andropenis, with diferents cientifics studies that prove that it works. I really recomend you this treatment, it repair 40% of the curvature.

In case of surgery, the patient can also use the andropenis after the surgery like an alternative treatment for a permanent results.

You can visit the web page and ask to the doctor. The web is www.andromedical.org

Check it, and review what I am saying.